-
A Guide to Medical Information and Support
www.geocities.com/HotSprings/1505/guide.html
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American Lung Association
www.lungusa.org
Date launched: April 1996
Website Administrator: Todd Whitley.
Outline document fact sheet minority prevalence and statistical
trends for lung diseases from A to Z.
Compare data from your state against others and see the latest
trends.
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American Lung Association of Washington
www.alaw.org/lung_disease/information_and_referral/sarcoidosis/
Date
launched: 1996
Website Administrator: Kenneth Wohlf.
The basic facts about sarcoidosis and
sarcoidosis resources in Washington state.
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Arthritis Foundation
http://www.arthritis.org/resource/fs/sarcoidosis.asp
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Chronic Lung Disease Resource on the Cheshire Medical Center Website
www.cheshire-med.com/programs/pulrehab/rehinfo.html
Date launched: Original Hospital site 1995
Website
Administrator: Jeffrey P. Newcomer, MD
Links to key information resources on
Sarcoid as well as a threaded lung disease forum and chat room.
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Coriell
Research Library Sarcoidosis Resources
www4.umdnj.edu/camlbweb/sarcoidosis.html
Date launched: 1997
Website Administrator: Betty Jean Swartz
The page was prepared in response to a patron query and posted as a
starting point for information on sarcoidosis.
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Doctor's Guide to the Internet
www.pslgroup.com/docguide.htm
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Dr. Abelson's Conditions Online
www.drabelson.com/ConditionsS.html
Date launched: January 1999
Website Administrator: Dr. Abelson
Our site provides access to other websites
that have information about sarcoidosis. Our site also addresses a
broad range of health care issues and provides treatment information
from holistic, traditional, and integrated methodologies.
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Drug InfoNet
www.druginfonet.com/index.html
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Duke University
www.duke.edu/
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Edmund's Home Page
www.edhayes.com/
Date launched: 1995
Website Administrator: Dr. Edmund M. Hayes
Links to key medical information and
resources on sarcoid.
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Health
Care Information Resources
-- Sarcoidosis Links
www-hsl.mcmaster.ca/tomflem/sarcoidosis.html
Date launched: July 1, 1995
Website Administrator: Tom Flemming
Collects information of interest to
patients, their families, friends and health
care workers.
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HealthGate
www.healthgate.com/
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HealthWorld Online
www.healthy.net/index.html
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Institute for Traditional Medicine Online
www.europa.com/~itm/patient.htm
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Johns Hopkins Medicine
hopkins.med.jhu.edu/
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Kipy's Place
community-1.webtv.net/Kipy1/KipysPlace/
Date launched: June 1, 1999
Website Administrator: Karen P. Barwick
An open and honest look at coping with
Sarcoidosis. It contains many links that are interesting and
informative. It offers hope and encouragement in knowing that
we are not alone.
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Laurie's Sarcoid Page
www.geocities.com/Heartland/Flats/4877/index2.html
Date launched: 1997
Website Administrator: Laurie McGee
Site involves dealing with sarcoid by
personal experience and was created by someone who surfed the net
alot in finding info. and support for this disease. I wanted to
contribute also.
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Let's Breathe Sarcoidosis Page
www.geocities.com/HotSprings/Spa/3513/
Date launched: April 8, 1998
Website Administrator: Brenda Harris
A general overview of Sarcoidosis.
It provides links to other medical and sarcoidosis websites.
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Loyola University Chicago
www.meddean.luc.edu/lumen/MedEd/Radio/sarc/sarc.htm
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Luvshelby's Sarcoidosis Page
http://lynnmcneill.spaces.live.com/
Date launched: December 1998
Website Administrator: Susan Kennelly
Describes what it is like to have
sarcoidosis from the personal view.
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Marilyn's Sarcoidosis Support
home.att.net/~twin663/wsb/index.html
Date launched: November of 2000
Website Administrator: Marilyn (Lynn)
My web site addresses all aspects of
sarcoidosis. I chat with and e-mail a lot of fellow sufferers. The
message board helps me know how my site is doing overall. This is my
only outreach since I am confined to my home and cannot attend my
local support meetings anymore.
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Mayo Clinic
www.mayo.edu/
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Medinex
www.medinex.com
Date launched: March 1998
Website Administrator: Dave Paquin
Medinex currently has several certified sites that deal with
sarcoidosis; we hope to continue to add more as time goes by.
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Mike's Information Pages
members.aol.com/_ht_a/mikespages/sarcoid.html
Date launched: January 1999
Website Administrator: Mike Haskins
Overview of sarcoidosis: what is it, what
causes it, who gets it, what are the symptoms, how is it
diagnosed, how is it treated, etc.
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MUSC Sarcoidosis Center
www.muschealth.com/sarcoidosis/
Date launched: May 10, 2000
Website Administrator: Marc A. Judson, M.D.
Patient education, research studies,
support group information, description of sarcoidosis, medical
description of pulmonary sarcoidosis, links to other sites.
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My
Life with Sarcoidosis
www.geocities.com/lynneberle
Date launched: August 1999
Website Administrator: Lynn Eberle
This site describes what it is like
living with sarcoidosis, the tests that are done and the medicines
that are used.
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My
Life with Sarcoidosis - Donna G.
lifewithsarcoidosis.homestead.com/DonnaG.html
Date launched: January 16, 2001
Website Administrator: Donna G Sheridan
My personal story of life with
Sarcoidosis. From the diagnosis, to the hurt and pain of betrayal by
friends and family and my everyday struggles. My hope is to help
others not feel lost and alone.
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My
Story: Living with Sarcoidosis
www.geocities.com/Wellesley/Atrium/1310
Date launched: August 1999
Website Administrator: Roberta Fernalld
Information, sharing how we all cope, friendship, reaching out to
others in pain, pain management, stresses of fatigue, etc
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National Jewish Medical and Research Center
www.nationaljewish.org/
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National Sarcoidosis Resource Center
www.nsrc-global.net/
Date launched: 1996
Website Administrator: Robert Conroy
Professionals or anyone that has an interest in sarcoidosis. Our
primary focus is education, available resources, networking and
promoting public awareness.
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No
Air To Go
noairtogo.tripod.com/
Date launched: May 1999
Website Administrator: S. Wood
General info on diagnosis, treatment, who
gets it, etc
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Österreichische Sarkoidoseseite
members.aon.at/paf/Sarkoidose.htm
Date launched: November 1998
Website Administrator: Peter A. Fischer
Information, a forum for questions, and
links
-
Pain.com
-
a world of information on pain
www.pain.com
Date launched: February 1997
Website Administrator: Ryan Springer
Lists of pain clinics and links to pain resources
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Pain
Management Online
www.painmngt.com/
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Patients Online Self Help - P.O.S.H.
freespace.virgin.net/ellie.vi/index.htm
Date launched: December 1998
Website
Administrator: Ellie Parker
Self help by way of communication with
others with similar problems, to keep a register of Sarcoid Patients
in the UK.
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PharmInfoNet
pharminfo.com/pin_hp.html
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Physical Medicine and Rehabilitation HealthWeb
www.galter.nwu.edu/index.cfm
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Roentgen Online Sources of Information
roentgen.gdl.iteso.mx/rsna.html#informatics
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RxList The Internet Drug Index
www.rxlist.com/
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Santa
Barbara Lupus & Rheumatic Diseases Group Home Page
www.silcom.com/~sblc/sarcoid.html
Date launched: February 18, 1998
Website Administrator: Pamela Gross
Our sarcoidosis page provides a list of
links to any and all sarcoidosis resources we can find, as a service
to people with sarcoidosis and their friends, families, and health
professionals.
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Sarcoidose Info-Site The Netherlands
www.sarcoidosis.net
Website Administrator: Jan Veneman Beilen
Date launched: October, 1999
We are giving information about all
aspects of sarcoidosis sometimes with a little bit of humor. All the
people who work on this site have, or are associated somehow with,
sarcoidosis.
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Sarcoidosis
www.geocities.com/Heartland/Lake/2801/Stories/sar.html
Date launched: September 1999
Website Administrator: Debby Ewen
Information on sarcoidosis with links to
support groups, stories, research, physicians and individuals
fighting to conquer sarcoidosis.
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Sarcoidosis.Me.Uk
www.sarcoidosis.me.uk
Date launched: July 2002
Website Administrator: Michael Matthews
Sarcoidosis.Me.Uk Welcomes all with, help,
understanding & support. For suffers of Sarcoidosis & their
families: You are no longer on your own.
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Sarcoidosis and the Nervous System
www.toddtroost.com/students/sarcoid.html
Date launched: 1996
Website Administrator: B. Todd Troost, M.D.
Basic features of Sarcoid involving the
Nervous system, written by Medical Students at Wake Forest
University School of Medicine.
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Sarcoidosis Australian Support Group
www.ozemail.com.au/~rtwo/sarcoid.html
Date launched: December 1996
Website Administrator: Bob Rumsey
Worldwide index of sarcoidosis web sites
plus local Australian & New Zealand information. Home page of
Sarcoidosis Australian Support Group and Internet
Chat-"sarcoidchat".
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Sarcoidosis Center
www.sarcoidcenter.com
Date launched: November 6, 1996
Website Administrator: Norman T. Soskel, MD, FACP, FCCP
Information about sarcoidosis for patients
and healthcare providers. Links to other pages about sarcoidosis and
upcoming events of the Sarcoidosis Center and other organizations
around the world.
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Sarcoid Connection
www.sarcoidosis.us
Date launched: August 2002
Website Administrator: Jose Hernandez
Offering live chat support, friendly hand
to reach out to and always being there when needed. I will
answer any question to the best of my ability. You ring, I'll
answer.
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Sarcoidosis Family Foundation
www.sarcoidosis.netfirms.com
Date launched: November 2000
Website Administrator:
Bob Vande Moore
The Sarcoidosis Family Foundation is a resource for patients and
loved ones to learn more about the disease. Included are helpful
links, search tools and a forum to share stories and
information.
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Sarcoidosis Friends & Family
pub48.ezboard.com/fsarcoidosisfriendsandfamilyfrm1
Date launched: January 13, 2001
Website
Administrator: Linda Clotiaux
Sarcoidosis Friends & Family is a support forum, for victims of
sarcoidosis and their family. There is threaded message, general
discussion forum within the group for all that seek knowledge
and support concerning the mysterious disease sarcoidosis.
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Sarcoidosis Helpline
members.xoom.com/fightnbak/hotline.htm
Date launched: June 1999
Website Administrator: Cheri
Our goal is to arm Sarcoid Patients with
the knowledge needed to take control of their own treatment. To
empower them with Support, Encouragement, Fellowship and with
Positive Thinking.
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Sarcoidosis Helpnet
www.dynateck.com/helpnet
Date launched: March 1997
Website
Administrator: Fadhilika Atiba-Weza
There are at least 100,000 documented
cases of Sarcoidosis in New York City. The Sarcoidosis HelpNet is a
volunteer organization founded to further research and public
awareness of this disease.
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Sarcoidosis My Heart & Me
www.bannerdown.freeserve.co.uk/Phil.htm
Date launched: October 1998
Website Administrator:
Philip Dawson
Living with
Cardiac Sarcoidosis and how life must go on to the fullest.
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Sarcoid Networking Association
www.sarcoidosisnetwork.org
Date launched: July 28, 2002
Website Administrator:
Michael Lafreniere, Delores O'Leary, Executive Director
The Sarcoid Networking Association website strives to educate
individuals, provide information and heighten public awareness
about sarcoidosis. Education is the primary goal. Information on
sarcoidosis and related health issues includes emotional
support, referrals to support groups and physicians with
expertise.
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Sarcoid Survivors of Canada
www.island.net/~rpmdiag/sarcoid/sarcoid.htm
Date launched: 1997
Website Administrator: Cheryl Spooner
Patient Registry for Canadians, support
and information for all.
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Sarkoidose, et mysterium!
www.sarkoidose.no
Date launched:
1 of June 2001
Website Administrator:
Rune Borgan Isaksen
All kinds of sarcoidosis and information
specific to Norway.
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Second Wind Lung Transplant Association, Inc.
www.2ndwind.org/
Website Administrator: Bill Powell
Date launched: 1996
A direct link from Second Wind to the
Sarcoidosis home page. A number of individuals with
Sarcoidosis are listed in various categories of the lung transplant
process.
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SmithDRay's Sarcoidosis Page
members.tripod.com/~SmithDRay/sarcoidosis-index-4.html
Date launched: June 1998
Website Administrator: Ray Smith
My wife
personal experience with sarcoidosis for 10 years, links we have
found useful and contact and support to and from those individuals
who sign our guestbook or email.
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Steven Huber's HomePage
www.stevenrhuber.com
Date launched: February
2002
Website Administrator:
Steven
Huber
The site contains general info about myself and the condition
that I have: Neurosarcoidosis and other afflicted areas of my
body. Also pictures of me and my sarcoid buddies!
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Suffering Sarcoid
www.geocities.com/sufrnsarcoid/indexSufferingSarcoid.html
Date launched: May 2001
Website Administrator:
Jacqui Noble
Patient
surveys to be used to start a data base to be used to educate
the professionals and help further understanding of sarcoid as
it affects patients.
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The Cleveland Clinic Foundation
www.ccf.org/
-
ThriveOnline.com
www.thriveonline.com/index.html
-
University of Michigan Medical Center
www.med.umich.edu/
-
University of Pittsburgh Medical Center
www.upmc.edu/clc/
-
Vereniging voor
sarcoïdosepatiënten
www.sarcoidose.be
Date launched: April, 2002
Website Administrator: Thomeer Michiel
Set up by the Belgian support group for
patients sarcoidosis, you will find information in Dutch about the support
group, the disease and links to other web sites. Site organized by patients with
sarcoidosis!
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World Sarcoidosis Society
www.worldsarcSOCIETY.com
Date launched: 1997
Website Administrator: Bren Korhonen
This web site addresses the newly diagnosed
patient not only with the clinical knowledge; but the human/personal
touch.
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YoungLung Online Support
www.geocities.com/younglungz
Date launched: January 2002
Website Administrator: Rebecca Snyder
This website and email support group
focuses on information and support for teens and young adults
affected by pulmonary sarcoidosis and other chronic lung
diseases.
This
award recognizes quality 
