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Golden Lifesaver Award Library |
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This
award recognizes quality
internet websites that promote sarcoidosis
awareness involving patient support and/or
medical information in a well organized,
well maintained manner.
This
designation is given to sites that
meet or exceed strict standards set forth
by Sarcoidosis Online Sites for this award.
They are then added to this
Golden Lifesaver Award Library.
To
the many physicians, clinicians and website developers who dedicate their time
to sarcoidosis research and public awareness, you have our sincere gratitude.
We
invite you to visit these award winning websites. (listed alphabetically)
**This award is by nomination only
and may not be used without prior approval. If you would like to know how to
nominate a website for the Golden Lifesaver Award please contact
us via email at:
jaysjob@gmail.com
for more information. |
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A Guide to Medical
Information and Support
www.geocities.com/HotSprings/1505/guide.html |
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American Lung Association
www.lungusa.org
Date launched: April 1996
Website Administrator: Todd Whitley.
Content: Outline document
fact sheet minority prevalence and statistical trends for
lung diseases from A to Z.
Compare data from your state against others and see
the latest trends.
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American Lung Association of Washington
http://www.lungusa.org
Date
launched: 1996
Website Administrator: Kenneth Wohlf.
Content: The
basic facts about sarcoidosis and sarcoidosis resources in
Washington state.
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Arthritis
Foundation
http://www.arthritis.org
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Chronic Lung
Disease Resource on the Cheshire Medical Center Website
www.cheshire-med.com
Date launched: Original Hospital site 1995 Website
Administrator: Jeffrey Newcomer, MD
Content: Links to key information
resources on Sarcoid as well as a threaded lung disease
forum and chat room.
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Coriell Research Library Sarcoidosis Resources
http://www.healthynj.org/dis-con/sarcoid/main.htm
Date launched:
1997
Website Administrator:
Betty Jean Swartz
Content: The page was
prepared in response to a patron query and posted as a
starting point for information on sarcoidosis.
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Doctor's Guide
to the Internet
www.pslgroup.com/docguide.htm
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Dr. Abelson's
Conditions Online
www.drabelson.com/ConditionsS.html
Date launched: January 1999 Website Administrator: Dr.
Abelson
Content: Our site provides access to
other websites that have information about sarcoidosis. Our
site also addresses a broad range of health care issues and
provides treatment information from holistic, traditional,
and integrated methodologies.
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Drug InfoNet
www.druginfonet.com
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Edmund's Home
Page
www.edhayes.com/
Date launched: 1995 Website Administrator: Dr. Edmund M.
Hayes
Content: Links to key medical
information and resources on sarcoid.
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Kipy's Place
community-1.webtv.net/Kipy1/KipysPlace/
Date launched: June 1, 1999 Website Administrator: Karen
P. Barwick
Content: An open and honest look at
coping with Sarcoidosis. It contains many links that are
interesting and informative. It offers hope and
encouragement in knowing that we are not alone.
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Laurie's
Sarcoid Page
www.geocities.com/Heartland/Flats/4877/index2.html
Date launched: 1997 Website Administrator: Laurie McGee
Content: Site involves dealing with
sarcoid by personal experience and was created by someone
who surfed the net alot in finding info. and support for
this disease. I wanted to contribute also.
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Luvshelby's
Sarcoidosis Page
http://lynnmcneill.spaces.live.com/
Date launched: December 1998 Website Administrator: Susan
Kennelly
Content: Describes what it is like
to have sarcoidosis from the personal view.
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Mike's
Information Pages
members.aol.com/_ht_a/mikespages/sarcoid.html
Date launched: January 1999 Website Administrator: Mike
Haskins
Content: Overview of sarcoidosis:
what is it, what causes it, who gets it, what are the
symptoms, how is it diagnosed, how is it treated, etc.
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MUSC
Sarcoidosis Center
www.muschealth.com/sarcoidosis/
Date launched: May 10, 2000 Website Administrator: Marc
A. Judson, M.D.
Content: Patient education, research
studies, support group information, description of
sarcoidosis, medical description of pulmonary sarcoidosis,
links to other sites.
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National
Jewish Medical and Research Center
www.nationaljewish.org/
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National
Sarcoidosis Resource Center
www.nsrc-global.net/
Date launched: 1996 Website Administrator: Robert Conroy
Content: Professionals or anyone
that has an interest in sarcoidosis. Our primary focus is
education, available resources, networking and promoting
public awareness.
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No Air To Go
noairtogo.tripod.com/
Date launched: May 1999 Website Administrator: S. Wood
Content: General info on diagnosis,
treatment, who gets it, etc
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Pain.com - a world of information on pain
www.pain.com
Date launched: February 1997 Website Administrator: Ryan
Springer
Content: Lists
of pain clinics and links to pain resources
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Pain
Management Online
www.painmngt.com/
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Patients
Online Self Help - P.O.S.H.
freespace.virgin.net/ellie.vi/index.htm
Date launched: December 1998 Website
Administrator: Ellie Parker
Content: Self help by way of communication with others with
similar problems, to keep a register of Sarcoid Patients in
the UK.
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Sarcoidosis
www.geocities.com/Heartland/Lake/2801/Stories/sar.html
Date launched: September 1999 Website Administrator:
Debby Ewen Content: Information on sarcoidosis with links to support
groups, stories, research, physicians and individuals
fighting to conquer sarcoidosis.
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Sarcoidosis
Awareness Society
www.uksarcoid.org
Date launched: July 31, 2009 Website
Administrator: Charlotte Doggett
Content: Aspect Of
Sarcoidosis: It is there to help Sufferers understand what
to expect and how they can get support.
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Sarcoidosis
Center
www.sarcoidcenter.com
Date launched: November 6, 1996 Website Administrator:
Norman T. Soskel, MD, FACP,
Content: Information about sarcoidosis
for patients and healthcare providers. Links to other pages
about sarcoidosis and upcoming events of the Sarcoidosis
Center and other organizations around the world.
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Sarcoidosis Family Foundation
www.sarcoidosis.netfirms.com
Date launched: November 2000 Website Administrator:
Bob Vande Moore
Content: The Sarcoidosis Family
Foundation is a resource for patients and loved ones to
learn more about the disease. Included are helpful links,
search tools and a forum to share stories and information.
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Sarcoid
Networking Association
www.sarcoidosisnetwork.org
Date launched: July 28, 2002 Website Administrator:
Michael Lynn Short
Content:
The Sarcoid Networking Association website strives to
educate individuals, provide information and heighten public
awareness about sarcoidosis. Education is the primary goal.
Information on sarcoidosis and related health issues
includes emotional support, referrals to support groups and
physicians with expertise.
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Sarkoidose, et mysterium!
www.sarkoidose.no
Date launched: June 2001 Website Administrator:
Rune Borgan Isaksen Content:
All kinds of sarcoidosis and
information specific to Norway.
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Second Wind
Lung Transplant Association, Inc.
www.2ndwind.org/
Date launched: 1996 Website Administrator:
Bill Powell
Content:
A direct link from Second Wind to
the Sarcoidosis home page. A number of individuals
with Sarcoidosis are listed in various categories of the
lung transplant process.
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SmithDRay's
Sarcoidosis Page
members.tripod.com/~SmithDRay/sarcoidosis-index-4.html
Date launched: June 1998 Website Administrator: Ray Smith
Content:
My wife personal experience
with sarcoidosis for 10 years, links we have found useful
and contact and support to and from those individuals who
sign our guestbook or email.
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Vereniging
voor sarcoïdosepatiënten
www.sarcoidose.be
Date launched: April, 2002
Website Administrator: Thomeer
Michiel
Content: Set up by the Belgian support
group for patients sarcoidosis, you will find information in
Dutch about the support group, the disease and links to
other web sites. Site organized by patients with
sarcoidosis!
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Wij hebben Sarcoidose
http://www.wijhebbensarcoidose.nl/
Date launched:
June, 2008
Website Administrator: J. Dekkers
Content: Biggest online forum for people
with Sarcoidosis in The Netherlands
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NOTICE: The information on this website and databases comes from
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It is meant to be an exclusive not a comprehensive listing. This
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listings will be updated whenever
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Site last updated:
Wednesday, January 25, 2012 01:51 PM.
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