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Support Groups in the U.S.A.

• CALIFORNIA
  • Om P Sharma, MD
    USC Dept of Medicine, Health Center
    1355 San Pablo St.
    Los Angeles, CA 90033
    (213) 342-5100
     
  • San Diego Sarcoidosis Support Group
    American Lung Association (meets quarterly)
    2750 Fourth Avenue
    San Diego, CA 92103
    (619) 297-3901
     
  • Sarcoidosis Clinic University of Southern
    California Medical Ctr
    1200 North State Street
    Los Angeles, CA 90033
     
  • Sarcoidosis Network Foundation Inc
    11428 E. Artesia Blvd, Suite 10
    Artesia, California  90701
    (562) 809-8500
     
  • Sarcoidosis Support Group City of LaPalma
    Community Center
    7281 Walker Street
    LaPalma, CA 90623
    (714) 522-6740
     
• COLORADO
  • Denver Sarcoidosis Awareness Support Group
    Meet on the 3rd Saturday of each month
    Contact:
    Shirley Holley or Leonard Holley Jr.
    (303) 375-9376 or (303) 375-9092
    supportgroup@denversarcoidosisawareness.org
     
  • National Jewish Center for Immunology &
    Respiratory Medicine
    1400 Jackson Street M-222
    Denver, CO 80206
    (800) 222-LUNG (5864)
     
• CONNECTICUT

  • National Organization for Rare Disorders (NORD)
    P.O. Box 8923
    New Fairfield, CT 06812
    (800) 999-6673 (203) 746-6518
    Fax: (203) 746-6481
     

• DELAWARE
  • American Lung Association of Delaware
    1021 Gilpin Avenue, Suite 202
    Wilmington, DE. 19806
    Contact:
    Tricia Monnig
    (302) 655-7258
    (800) LUNG-USA (586-4872)
     
  • Arthritis Foundation, Delaware Chapter
    222 Philadelphia Pike
    Wilmington, DE.
    (302) 764-8254
     
• DISTRICT OF COLUMBIA
  • Sarcoidosis Support Group
    110 Irving St. NW. 2 NE
    Washington DC 20010
    Contact:
    Carol Bartlett
    (202) 877-6286
    Fax (202) 877-5779
     
  • Sarcoidosis Support Group Greater S.E. Hospital
    Contact: Jeanette Ledbetter
    (202) 574-6348
     
  • Sarcoidosis Support Group ALA of DC
    475 H Street NW
    Washington DC 20001-2617
    Contact:
    Howard Wilson
    (202) 682-5864
     
  • Sarcoidosis Treatment Center DC General Hospital
    1900 Massachusetts Ave, SE
    Washington, DC 20003
    (202) 675-5000
     
• FLORIDA

  • The Sarcoidosis Support Group
    Outpatient Surgery Center Room 1, 2nd floor
    1501 U.S. Hwy 441
    The Villages, FL.  32159
    Contact: 
    Terry Bruce
    (352) 751-3545
    ed9terry@yahoo.com
     

• GEORGIA

  • CSRA Autoimmunity and Chronic Illness Support
    217 Brooks Drive
    Martinez, GA. 30907
    Meetings held on Monday nights every other
    month from 7:00-9:00 P.M. at the main
    headquarters Fire Department at
    3910 Desoto Road, Martinez, Ga. 30907
    Contact:
    LeAnne Byrd or Lynne Young, RN
    (706) 863-4109
    forthebyrdsfive@bellsouth.net
     

  • Sarcoidosis Support Group of North Georgia
    Mount Pisgah United Methodist Church
    9820 Nesbitt Ferry Rd.
    Alpharetta, GA 30022-5349
    Contact:
    Bill Owens
    (678) 557-6260
    billowens65@charter.net
     

  • Support Group
    5353 Reynolds St.
    Savannah GA 31405
    Contact:
    Sally Deal, RN, FNP
    (912) 819-8032 or (912) 819-6209
    deals@sjchs.org
     
• ILLINOIS
  • American Lung Association of Illinois
    3000 Kelly Lane
    Springfield, IL 62707
    Contact:
    Michael L. Mark B.S., R.R.T., R.N.,
    Manager, Resource Center
    800-LUNG-USA  (217) 787-5864
    Fax: (217) 787-5916
    mmark@lungil.org 
     
  • Bloomington-Normal Sarcoidosis Support Group
    Sarcoidosis Research Institute SRI
    Meet at Franklin and Virginia Ave.
    Normal, IL 61761
    Contact:
    Dr. Eddie Glenn
    (309) 438-7884
     
  • Champaign-Urbana Sarcoidosis Support Group
    Sarcoidosis Research Institute SRI
    Meet at 1400 W Park
    Urbana, IL 61801
    Contact:
    Dr. Eddie Glenn
    (309) 438-7884
     
  • Chicago Southside Sarcoidosis Support Group
    Meet at Pioneer Village
    340 E. 38th Street-1st Floor Activity Room
    Chicago, IL. 60653
    Contact:
    Laura Harris (773) 285-2608
    Gwen Mitchell (773) 710-5495 mitchell1426@sbcglobal.net
     

  • Holy Cross Hospital
    2701 West 68 Street
    Chicago, IL
     

  • Illinois Sarcoidosis Support Group, Chicago
    P.O. Box 21334
    Chicago, IL 60621
    Contact:
    Glenda Fulton
    (312) 288-2881
     
  • Let’s Breath Sarcoidosis Support Group
    Meet at Rush North Shore Medical Center
    9600 Gross Pointe Road
    Skokie, IL 60076
    2225 Foster Street
    Evanston IL 60201-3353
    Contact:
    Brenda Harris
    (847) 328-9410
    BHarris354@aol.com
     
  • National Sarcoidosis Society, Inc.
    (773) 536-7754
     
  • Peoria Sarcoidosis Support Group
    Sarcoidosis Research Institute SRI
    Meet at 1137 W Lake Ave.
    Peoria, IL 61790
    Contact:
    Dr. Eddie Glenn
    (309) 438-7884
     
  • Providence Cook County Hospital
    500 East 51 Street
    Chicago, IL
     
  • Sarcoidosis Support Group Champaign, IL
    Carrie Buckley
    (217) 356-7010
     
  • Sarcoidosis Research Institute SRI
    P.O. Box 733
    Normal IL. 61761
    Contact:
    Dr. Eddie Glenn
    (309) 438-7884
     
  • Springfield Sarcoidosis Support Group
    Sarcoidosis Research Institute SRI
    Meet place: 800 E. Carpenter
    Springfield, IL 62769
    Contact:
    Dr. Eddie Glenn
    (309) 438-7884
     
• INDIANA
  • Central Indiana Sarcoidosis Support Group
    Kindred Healthcare Center
    1700 West 10th St.
    Indianapolis, IN  46202
    please call for directions & meeting schedule
    Contact:
    Robbie L. Darden & Colleen Ciampa
    (317) 335-2981
     
  • Sarcoidosis Support Group Gary Indiana
    Methodist Hospital, Respiratory Department
    600 Grant Street
    Gary, IN  46402
    Contact:
    Trudy Dunaway or Leatrice Freeman
    (219) 886-4644 or (219) 938-8343
     
• KANSAS

  • Sarcoidosis Support Group of Kansas
    St James Episcopal Church
    3750 East Douglas
    Wichita, KS 67204
    (316) 838-0126
     

  • Sarcoidosis Support of Kansas
    3268 Somerset Drive
    Wichita KS 67204
    Contact:
    Marge Riley
    (316) 838-0126
     
• KENTUCKY
  • Sarcoidosis Support Group (meets quarterly)
    Baptist Hospital Education Center
    4000 Kresge Way
    Louisville, KY  40207
    Contact:
    Ann Sizemore, RRT (502) 897-8885
    asizemore@bhsi.com
    Denise Lashbrook, RN (502) 897-8833
     
• LOUISIANA
  • East Jefferson General Hospital Sarcoidosis
    Support Group (meets quarterly)
    Sponsored by East Jefferson General Hospital and
    the American Lung Association of Louisiana Inc.
    East Jefferson General Hospital Respiratory
    Conference Room
    4200 Houma Blvd.
    Metairie, LA 70006
    Contact:
    Lori Morris, R.N. (504) 454-4871
    lmorris@ejgh.org
     
• MARYLAND
  • Anne Arundel County Sarcoidosis Support Group
    Severna Park Library
    45 McKinsey Road
    Severna Park, MD.
    Contact:
    Ruth Pinder (410) 519-5887
    Betty Powell (410) 263-3123
     
  • National Information Center for Orphan
    Drugs and Rare Disorders
    Orphan Products Development
    5600 Fishers Lane, Room 873
    MC HF-35
    Rockville, MD 20857
     
  • Sarcoidosis Clinic
    Johns Hopkins University Hospital
    601 North Caroline St
    Baltimore, MD 21287
    (410) 955-5464
     

  • Sarcoidosis Self-Help Group
    4420 Loch Raven Blvd.
    Baltimore MD 21239
    Contact:
    Mathew Robinson ALA MD.
    (410) 560-2120
     

• MICHIGAN
  • Beaumont Sarcoidosis Support
    Sponsored by Physicians of Beaumont Hospital)
    20847 Bethlawn Blvd.
    Ferndale, Michigan 48220
    Contact:
    Victoria R. Rice
    (248) 545-0320
     
  • Ford Hospital Sarcoidosis Support Group
    Ford Hospital, West Grand Blvd.
    Detroit, MI.
    Contact:
    Wanda Bibbs
    (313) 916-0009
     
  • Lawrence R. Davis Foundation, Inc.
    918 Cawood
    Lansing MI 48915
    Contact:
    Barbara Davis
    (517) 484-7831
     
  • Sarcoidosis Assoc. of Mid-Michigan
    310 W Linden
    Carson City MI 48811
    Contact:
    Patti Peiffer
    (517) 584-3776  (517) 235-4370
     
  • Sarcoidosis Resource Support
    15633 West 11 Mile Road, #108
    Southfield, MI 48076
    Contact:
    Pamela Mullins, MA
    eves (248) 569-8091 days (313) 873-7321
     
• MINNESOTA
  • National Sarcoidosis Society, Inc.
    Minneapolis/St. Paul Chapter
    2233 University Ave S. #426
    St. Paul, MN  55114
    (651) 642-0811
     
• MISSISSIPPI
  • Sarcoidosis Support Group Mississippi/Alabama
    539 Magazine Street
    Tupelo, Mississippi  38801
    Contact:
    Jessica Slaughter
    (601) 841-0984
    dangail@ebicom.net
     
• MISSOURI
  • Cape Girardeau Missouri Sarcoid Support Group
    Southeast Missouri Hospital
    1701 Lacey Street
    Cape Girardeau, MO. 63701
    Contact:
    Nancy Mosley RN CPNP
    (573) 335-2229
     
  • Kansas City Sarcoidosis Support Group
    316 E. Meyer Blvd.
    5436 Garfield
    Kansas City, MO 64130
    Contact:
    Patricia Keeling
     
• NEBRASKA
  • Sarcoidosis Self Help Group
    PO Box 11204
    Omaha NE 68111
    Contact:
    Yolanda Benitacarr
    (402) 455-7838
     
• NEW JERSEY
  • Deborah Heart And Lung Center
    Brown Mills, NJ 08015-1799
    (609) 893-6611, ext 547
    Fax: (609) 893-3134
     

  • Jersey Shore Sarcoidosis Support
    Jersey Shore Medical Center
    Contact:
    Tracy
    (732) 660-0560
     

  • Lungs At Work
    East Brunswick, NJ
    Medical Advisor - Andrew Freedman
    (908) 651-7493
     
  • National Sarcoidosis Resource Center
    P.O. Box 1593
    Piscataway, NJ 08855-1593
    Contact: 
    Sandra Conroy
    (908) 699-0733  (908) 699-0882
    sconroy@nsrc-global.net
     
  • New Jersey Self-Help Group Clearinghouse
    375 E. McFarlan St., Dover, NJ 07801.
    Contact:
    Barbara White
    (973) 989-1122  Fax: 973-989-1159
    (800) 367-6274
     

  • Respiratory Health Foundation
    55 Paramus Rd
    Paramus, NJ 08652
     

  • Sarcoidosis Family Aid & Medical
    Research Foundation
    460 Central Avenue
    East Orange, NJ 07018
    Contact:
    Geneva Ausley
    (201) 399-3644  (800) 203-6429
     
  • Sarcoidosis Support Group
    268 Dr. M.L.King Blvd.
    PO Box 6415
    Newark NJ 07106
    Contact:
    Jean Curlin-Miller
    (201) 374-7570
     
  • Sarcoidosis Support Group of Central NJ
    East Brunswick Library Civic Drive
    B-1 Brier Hill Court
    East Brunswick, NJ 08816
    Contact:
    Sandra Conroy
    (732) 699-0733 (732) 651-7493
    (908) 699-0154
     
• NEW YORK
  • Mount Sinai Sarcoidosis Support Group
    One Gustave L. Levy Place
    Box 1232
    New York, NY 10029
    Contact: Pearl V. Johnson, Community Liaison
    (212) 241-8733
     
  • National Self Help Clearinghouse
    25 West 43rd Street
    New York, NY 10036
     
  • Sarcoidosis Self-Help Group
    Nassau County Medical Center
    East Meadow NY 11554
    Contact:
    Robert Schoenfeld
    (516) 483-2666
     
  • Self-Help Support Group
    6155 Terrace Green
    East Amhurst NY 14051
    Contact:
    Pat Binber
    (716) 876-3024
     
  • USA National Sarcoidosis Foundation
    P.O. Box 626
    Schenectady, NY 12301
     
• NORTH CAROLINA
  • Sarcoidosis Awareness to Rally the Community SARC
    5F Dundas Circle, Greensboro NC
    Contact:
    Karen Lowe
    (336) 988-8468
    sarcofthetriad@yahoo.com
     
  • Sarcoidosis Support Group
    1002 Castle St.
    1021 Fitzgerald Dr.
    Wilmington NC 28405
    Contact:
    Uldridge Galloway
    (910) 395-0154
     
  • Sarcoidosis Support Group
    Raleigh, North Carolina
    Contact:
    Reginald Buie
    (919) 359-9010
    rsb132@msn.com
     
  • Triangle Area Sarcoidosis Support Group
    Soapstone UM Church
    12837 Norwood Road
    Raleigh, NC 27613
    Contact:
    Priscilla Fairley
    (919) 676-6498
    fairleyl@bellsouth.net 
     
  • University of North Carolina Sarcoidosis
    Support Group
    The University of North Carolina
    Chapel Hill Healthcare
    130 Mason Farm Road
    Chapel Hill, NC 27599
    Contact:
    Sharikia Burt
    (919) 966-2531  (919) 966-8833
    Sharikia_Burt@med.unc.edu
     
• OHIO
  • Central Ohio Sarcoidosis Support Group
    Northern Lights Library
    4093 Cleveland Ave.
    Columbus, OH. 43224
    Contact:
    Vikki Goldstein
    (614) 645-2240
    onecincyfan@hotmail.com
     
  • Sarcoidosis Support Group of Dayton Ohio
    8910 Autumn Gates
    Huber Heights OH 45424
    Contact:
    Rita Waymier
    (513) 667-0062
     
  • Sarcoidosis Support Group of Southern Ohio
    PO Box 468 Cincinnati Area
    Harrison, OH 45030
    Contact:
    Judith L. Kay
    (812) 637-0915
     
• OREGON

  • Sarcoidosis Networking Association
    2nd Saturday of every month at 11:00 AM
    Albany General Hospital
    1046 6th Ave. SW 4th floor
    Albany, Oregon.
    Contact:
    Kristi Anderson
    (541)-905-2092
    aghsarc@yahoo.com
     

  • Sarcoidosis Networking Association
    Last Saturday of every month at 12:30 PM
    Providence Hospital
    4805 NE Glisan Street Room HCC6
    Portland, Oregon
    Contact:
    Kristi Anderson
    (541)-905-2092
    aghsarc@yahoo.com
     

• PENNSYLVANIA
  • Sarcoidosis Support Group
    725 Rollinson Road
    Hermitage, PA.  16148
    Contact:
    Bernadette Kutcher, D.O.
    (724) 342-4964
    Fax: (724) 342-5944
     
  • Sarcoidosis Treatment & Research Center
    Thomas Jefferson University Hospital
    111 South 11th Street, Suite 4240
    Philadelphia, PA 19107-5092
    (215) 955-6590
     
• RHODE ISLAND
  • New England Sarcoidosis Association
    298 Central Pike,
    North Scituate, RI  02857
    Contact:
    Michael Sweeney, Jr., RN, CMT, MA
    (401) 647-4944
    NESarcoid@juno.com
     
• SOUTH CAROLINA
  • The Medical University of South Carolina
    171 Ashley Avenue
    Charleston, SC  29425
    Contact: 
    Susan D'Alessandro
    (800) 805-6614
     
  • Sarcoidosis Support Group
    McLeod Regional Medical Center
    555 E. Evans Street Room 1 C
    Florence, SC 29501
    (843) 667-2000
     
  • The Upstate Sarcoidosis Support Group,
    Anderson County
    Anderson County Library
    1203 White Street
    Anderson, SC  29624
    every 4th Monday 6:00pm
    Contact:
    Georgia Rogers
    (864) 261-9659
     
  • The Upstate Sarcoidosis Support Group,
    Spartanburg County
    Middle Tyger River Library 170 Groce Road
    Lyman, SC  29365
    every 3rd Monday 6:00p.m.
    Contact:
    Brenay McNeil-Webb
    P.O. Box 2133, Spartanburg, SC  29305
    (864) 576-8764
     
• TENNESSEE
  • Sarcoidosis Patient Forum
    Sarcoidosis Research Institute SRI
    3475 Central Ave.
    Memphis TN 45030
    Contact:
    Paula Polite
    (901) 327-5454  (901) 327-5455
     
  • Middle Tennessee Sarcoidosis Support Group
    P.O. Box 1342
    Cookesville, TN  38503
    Contact:
    Becky Robertson
    (931) 528-7826
     
  • The West Tennesse Sarcoidosis
    Support Group
    1670 McLemoresville Road
    Huntingdon, TN  38344
    (731) 986-9832
     
• TEXAS

  • Janine's Sarcoidosis Outreach
    Foundation & Support Group
    12600 Bissonnet A4 Box 477
    Houston, Tx  77099
    (832) 248-6621
     

  • Sarcoidosis Support Group
    El Paso, TX
    Contact:
    Kathrine Wilson
    (915) 857-5285
     

• VIRGINIA
  • Sarcoidosis Self-Help Group
    American Lung Association of Northern Virginia
    9735 Main Street
    Fairfax, VA 20031
    Contact:
    Carolyn Thomas
    (703) 591-4131
     
  • Sarcoidosis Support Group
    704 Woodnote Lane
    Newport News VA 23608
    Contact:
    Beverly Moses
    (804) 988-3065
     
  • Sarcoidosis Support Group
    5349 E. Princess Anne Rd.
    Norfolk, VA 23502
    (757) 855-3059
     
• WASHINGTON
  • Sarcoid Networking Association, (SNA)
    6424 151 Ave East
    Sumner, WA  98390-2601
    Contact:
    Dolores O'Leary
    (253) 826-7737
    sarcoidosis_network@prodigy.net
    This organization publishes the Sarcoidosis
    Networking newsletter 6 times a year and is
    sent out through USPS. No subscription fee.
    Newsletter also available online.
     
  • Pierce County-South Puget Sound/Sarcoid
    Networking Association
    Monthly Meetings - rotating locations
    6424 151 Ave East
    Sumner WA  98390-2601
    Contact:
    Don O’Leary:
    (253) 891-2106
     
• WISCONSIN
  • BayCare Clinic Pulmonology
    Aurora Bay Care Medical Center
    Dr. Raul Mendoza-Ayala
    2845 Greenbrier Rd. Suite #320
    Green Bay, Wisconsin 54311
    (920) 288-8310
    Fax: (920) 288-8315
    rmendoza@baycare.net
    (this sarcoidosis support group will be re-opening on Wednesday, January 10th, 2007)
     

International Support Groups

• AUSTRALIA
  • Sarcoidosis Australian
    Support Group
     
• BELGIUM
  • Vereniging voor
    Sarcoïdosepatiënten
    Hilde Santermans
    UZLeuven Herestraat 49
    B-3000 Leuven, Belgium
    tel: +32 (0)16 346806
    fax +32 (0)16 346803
     
• GERMANY
  • Deutsche Sarkoidose
    Vereinigung gemeinnütziger
    e.V. Bundesverband German
    Sarcoidosis Association
    non-profit Association
    Federal Association
    Postfach 30 43 P.O.Box 30 43
    D - 40650 Meerbusch
    Tel./Fax: +49 (0) 21 50/73 60
    sarkoidose@aol.com
     
• NORWAY
  • Sarkoidose, et mysterium!
    (Sarcoidosis, a mystery!)
    2682 Lalm  Norway
    Telefon 61232505 
    Telefaks: 61232506
    Organisasjonsnummer:
    983 871 437
    Sparebanken NOR
    1604.03.74691
    Rune B.Isaksen
    post@sarkoidose.no